Showing posts with label cancer survivor. Show all posts
Showing posts with label cancer survivor. Show all posts

Tuesday, August 01, 2017

When you are smacked in the face with more odd reality.

I got a phone call this time last month, from the case manager handling my disability claim.

She said as of August 31st I was no longer disabled. I was very pleased to hear that. I can't wait for the 31st to roll around, and for me to pop out of bed, jump up, and carry on like I did over 5 years ago.

Oh wait, that's not going to happen.

Unless that whole spinach turning into a new heart muscle (true story) is going to happen with building a whole new leg, I do believe that on August 31st I will wake up, and still be disabled. Much to everyone's sadness, mine included. Well, sad that I know it isn't going to happen, not that I miss my leg, because I don't.

What I miss is being able to move... efficiently & effectively. I can move, sort of the same as an 89 year old. This was something I wasn't really expecting. Especially two years out of the gate.

As I type, I am not even wearing my leg, due to a tiny little ulcer that is wreaking havoc on the "medial epicondyle" (which is the location kinda right next to your knee on the femur) .. but that is the location of the where your bone is round on the end .. and now that this leg is skin and bone, it's rubbing kind of awful.

Anyways .. I am returning to work at the beginning of September (I believe). I must wonder how many prosthetists know people that return to work two years later, and do not have a proper leg yet, that works.

There is that slight oversight in the disability claim people. I mobilize with my leg, not in a wheelchair, but that is what they claim. I can work in a wheelchair, so therefore I can work.

Thanks guys ... love ya. Not.

My current level of function is this. Well, today I am "supposed" to be hopping with my walker. Although that is freaking brutal, so I have come to know, after hopping for a year, fuck. I walk with a cane, with my eyes cast downward. I can not walk and talk and concentrate on a task. If people brush past me, I immediately have a gumby like reflex that my free hand flies up, and I am locked into a stiff position, or somehow we could say I am having my own personal game of freeze tag. I walk next to walls, so people can't brush past me, I stop cold turkey if I have someone who approaches me from the front that isn't looking. I can't carry an object and maneuver through obstacles. I definitely can not go up or down stairs without severe concentration. I move as fast as somebody who is in their late 80's.

Who would have thought losing your leg, would have given you all sorts of hidden ripple effects in this.

Well ... it is off to work I go ... who do sue when you fall over? Asking for a friend. 

Saturday, August 13, 2016

Seriously AUGUST !!!

Good Morning to the people of the Internet lands that fill my blogger feed with great stories and good laughs.

You have missed me, I can tell.





I can officially say .. I have been busy. Busy walking about, or bumbling along, given the time of day or the amount of flower watering I have managed through out the day.

Life is cruising along a predicted and steady path. I am gaining strength and speed, and losing gadgets along the way. I am "sort-of" down to using a cane, rather than a walker to motor about. That's a crazy amount of confidence to trust that your brain can think and react on two different playing fields. ALL.THE.TIME.

That's an accomplishment.

I have been able to "kind-of" adapt to walking and maneuvering on the lawn. Wow, what a treat ... Sort of .. Basically it means that I can get to my flower beds, but given the time of day, I can't do it when I am bordering on exhaustion .. It is VERY VERY hard ... Attending to two completely separate tasks, and doing them to completion is monumental!

Currently around these parts the heat has been hitting us a little on the hard side .. So I have to go it slow ... The leg doesn't exactly like being cooped up in a liner that does not permit any type of breathing space ... And embarking on any type of endurance or exercise or even movement (see above paragraph!) sparks a flurry of perspiration ... So pretty much all my movement is slowed considerably.

The other night I was out walking around the block with the four wheeled walker, a cane, and walking poles .. The husband says to me .. "Uhm .. If you didn't have so many gadgets with you, you might be able to walk a little faster .. !" ... I was trying out all the walking apparatus to see what was the easiest method of movement. I am still as slow as a snail. The Lego Man said to me that I was working at a disadvantage. Perhaps. My brain sees this as a huge advantage .. From here, it can only get better.

So my "government issued leg" will be slowly replaced by the $14,000.00 leg, if the insurance companies agree to it. I hope they do. It will improve my mobility & extend my ability to conquer lifes agenda ... Although I will not be able to get a hidden compartment for lipstick, or a USB port, or even Bluetooth ... But, it will give me the ability to freely move about ... With greater ease.




I went to the gym the other day to ride the upright bike at the community Center. They only had one upright bike. I didn't want to ride a recumbent ... The gym attendant helped me get on the bike, and even strapped my foot to the peddle, so it would stay on. I did mention that I would need help to get the foot un strapped, since I couldn't even reach it. No problem she said. After 15 minutes of riding, I saw her pluck upon a cupboard, reach for her purse, and yell over to some gym folks .. Alright people, I'm leaving, she said. WTF. There I was ...stuck to the upright bike with my right leg ...  The first and last time I go to the community Center gym.

I spent July 31st having an awesome day ... as much as I tried not to think of the monumental time that had passed since last year, the same day I had the leg departed ... I spent THIS July 31st with two of the boys friends, and the boy, and the girl in the back yard ... It was simply an awesome day ... One that makes me feel just so thankful that I am alive, and over the hurdles of the past four years. Big deal, at this time, I am currently learning how to walk, and virtually re-do life ... But THIS I can do !!

TODAY I am debating what is on my agenda ... So far I have missed walking at the tack, it is too hot to go now .. I want to garden, but that will lead to a hot and unhappy leg ... And yet .. I wish to NOT be stuck inside ... Which is why I do not wish to keep painting my picture that sits at the other end of this table .. So something of greatness will have to come my way .. I am thinking I am going to go for a car ride to the Americas .. I am going to bring my camera and take pictures .. I think that is what I am going to do ..

Off to find my passport .. Later my favourites !!!!



Tuesday, February 02, 2016

Today finally arrived.

This day took forever to get here.

I am fascinated that TODAY ... Arrived on the same day that a loved one had passed. I can't help but think of the reason for that ... !! I think that spirit father of mine had something to do with it.

My mom was fascinated with the spirit church thingy-majig. One day I will take her.

SO ... Today ... TODAY I got to stand on my lovely fake leg. It was so lovely to stand on that leg. Unbelievable beautiful actually.

My best best moment was The Lego Man ... Just sitting back, and giving me that moment of standing on that leg ... Letting me feel intact and whole again,... Letting me feel BETTER than I felt in so many months that have turned into years ... He just backed up, and let me have that moment of feeling like the person I once was, before this "thing" took over.

For comfort and safety sake .. I wore my green comfy vest ... What an unbelievable high.

Prosthetics ... What a pretty cool profession ... I certainly couldn't do it ... But GLAD somebody can!


Friday, January 15, 2016

Raw carrots & soup

Interesting day.

I have quietly decided you can just never hand over peace to someone. Not possible. IMpossible. Hugely IMpossible.

My frenzied home bound energy can be a bit on the overwhelming side ... Especially if you are not up to snuff of being on the receiving of the whacky craziness.

I am tired of being locked here, away from people, unable to be free to do as I please, when ever I please, and MORE NOTABLY .. Obligated to be places, where otherwise I have to be away from the home, and out of touch.

In the thrill of never being good enough, the sister was most not pleased with my sudden silence on the texting machine. She fails to realize that I had nothing fucking to say. Not a word. I didn't talk to her, I didn't talk to my any other people, unless they talked to me ... I just haven't.

I gulped fresh air, sat on the porch, even in the pouring rain of winter, ... Just to keep my mind in a stream of moving forward. The sister told me she was pissed that I was silent. I am silent for many reasons.... I have texted before ... Many times, and things have been left, with no message returned. I haven't been bothered to challenge her on her response one time ... "Ah, I didn't feel like it" ... Thanks, good to know that I wasn't worthy.

At the end of the day her mammogram came back pretty much negative. She then said to me that I shouldn't be going to pieces because of her shit .... Uhmmmm .... Thanks, but please don't tell me how to feel, I am allowed to be concerned .... And quite frankly, being locked up in a house ... Unable to partake in the real world .. Sometimes you are left thinking about things a little too often ....

Jesus Fucking Christ .... I wasn't going to pieces ... However ... Knowing that I have another important person in my life walking the same path as her, and me left just waiting in limbo still ... Ya ... I am allowed to feel the way I feel. Fuck.

Oddly enough .. I have been silent ... However ... Probably way more silent because I actually have nothing of any value to contribute .... I am kinda wildly bored being locked in a home that I wish to be away from .... It's almost as though I am waiting for the lottery ticket to cash in .... I dare to dream of the possibilities of what is going to happen around the corner .... Once this leg get's returned to it's starting position!

No soup for you .. Or me....  Just a whole bowl of slop.