Showing posts with label scleroderma. Show all posts
Showing posts with label scleroderma. Show all posts

Wednesday, February 17, 2016

Amputee Advice take 495

Well here we are ... Almost 7 months after this leg is chopped off ... And I now have a little VAC attached to me. This is good. We are on the upswing. We have caught this rather minute little wound making attempts to heal up, and disappear into the land of mysteries.

I would enjoy some rationalization as to why this has taken exactly this long ... Not the VAC, but the process. I want some reasoning behind the purpose as to why this has played out for as long as it has. There has to be a reason why things have just taken this long. AND I am not talking about the human biological process ... In the world according to the universe, there is a larger reason as to howcome this process has continued for so long.

Except I am not partial to that answer.

Is it self-discovery, or one of saving myself, a lesson learned in patience, or the universe just messing with me that I wasn't to be free in this world sporting a way more functional leg, and independent of all things that regular joes can do?

Again, these questions remained unanswered.

I just wrote to a friend ... And thought I would make the timely purchase of the Dr Suess Classic .. "Oh the places you will go" ... Because NOW, today, with this LAST LEG of the race so close .. I feel I have finally reached the finish line, and can embark on my untimely pilgrimage ..... I am ready.... Except I just need a couple centimetres of tissue growth to fill the gap .. Then I am ready.

In other things ...

So the antibiotics almost finished me off. Holy smokes ... They were a bad scene ... Although NOW that I am finished them after a quick four day course, as opposed to the original 14 days I was going to have to suffer from ... They are done, and I hope they remain done.

I did some invigorating chair yoga today ... I think over time I will get better at it ... Currently I just start to laugh. I am not sure why ... I just start laughing ... I think it's the NON quietness of my brain that starts talking to me, not allowing myself to find that claiming spirit or whatever it is. But, I think it's there .. Again ... More time to digest finding the strength to be still and quiet ... When all I think about is being up and at it, and movable and functional. At this moment in time, I come from a place of stillness and quiet ... And when it's "time" to be still and quiet I am having a hard time. Oh well, my very kind of insightful physio said this isn't a race. Which was a really good thing to say ... For me.

Well, the driving situation is about to become real ... Just a number hoops to jump before I begin that process, and then I will be good to go ... Functional driving assessments, people deciding whether you are capable, a doctors visit, money to change hands, then back to other people as to whether or not I can drive, then a phone call to the gadget guy .. And then I don't know .. Driving lessons, and then a road test ... It just goes on and on ... I wish now I would never had said anything ... And carried on like before ... Nobody would be the wiser ...

BUT for now ... Me and this little V.A.C. Will bubble about the home for the next number of days.

Wednesday, February 10, 2016

Seriously ..... This is the ridiculous ....?

So the girl didn't pass her driving test. Shit. Now I can't ask her to drive me on Monday! OK ... Moving on to someone else then ...

Alright ... In things that are continued to be messed up:

There's a hole in the leg because somehow a staph infection & MRSA has invaded my space.

How did this happen ... ? All I know is that there wasn't an ounce of anything in it, as reported by a swab way back on January 5th, 2016. And now there is.

All the internet searching the Google-de-ness of the lands can not seem to find a good enough answer for me. I want to know if this MRSA is a skin & soft tissue, or a deeper wound ... Because it isn't just sitting on the top of my skin ... The wound has traveled down to be about a good centimetre plus in depth ... Will oral bug drugs be enough ... Cause I have an end of a tibia & fibula sitting there .... We're is that MRSA & staph finding themselves ... ?

So I think I have had enough of the stupidity ... Thanks a lot, and a bunch, and then some ... Just give me my not so fancy leg, let me stand, then walk, and move on ... K thx & bye.

Monday, February 08, 2016

There's a hole in my socket dear Liza dear Liza

Two weeks ago I had a hole in what should be my incision line smaller than a pencil tip. Today it's 2cm long by about 1.5 cm deep. I now have 6 days worth of waiting to see the orthopedic surgeon. She will look at it, look at me, and smile and say .. You need a plastic surgeon, not an orthopedic person, but thanks for coming in today.

I have been asking since September, then October, then November, and onto December at my monthly follow ups ... Should I be seeing a surgeon/somebody about this .. ?  In January,  the rehab doc decided that he wanted to see me, and then was surprised that it wasn't healed. I am surprised at all of these people being surprised by me ... They are ALL very young ... Very very young, very new to their practicing .. And then along comes healthy wild woman, with a very silent autoimmune disorder, which NONE of them have taken into consideration ... And they are SURPRISED by me ...

This game is getting boring. Completely boring.

The bigger part of the game is the fact that I need a plastic surgeon. One lady doc flat out refused. The other guy, who had seen me in the past, first said 3-4 months, then reneged and then refused to see me as well. Nice. Asshole. I asked him at some point way way long into the end of 2014 when all this cancer business was coming about, was he prepared to deal with a "scleroderma" type of  person, he nodded his head yes. Well, I have news for him, he should have shook his head NO, he was not prepared to deal with the oddball situation such as me. Things just go sideways. That's how it works, and I am not sure why.

In the meantime, I have a largER hole in my leg, it needs some "surgical intervention" otherwise this is going to months upon months of healing time. I'm done healing. I need to start walking.

In the meantime:

THESE things have happened:

The boy has nicely agreed to play a show with his band.
The girl is going for her drivers test this week. She also is starting a night school course. (Read BUSIER!!!!)
I have read two books: The Owl that Called my Name AND The Untimely Pilgrimage of Harold Fry. BOTH were excellent books! AND I have decided to return to my book club at the library ... And I have taken up a new pattern in wash clothe making. PLUS I have another two books on the go, and have another 2 knitting projects milling about.
Not a lot .. But enough that keeps me wild and crazy while locked up in this house.